Prostate issues: a public service announcement

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corkybstewart

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About 5 years ago I started having prostate issues. I found a urologist, he spent 3 years and a ton of my money trying to prove I had cancer. In the meantime I had 2 episodes of massive kidney infection that caused septicemia resulting in multi day stays in the hospital on high powered IV antibiotics.
Then I moved and found a new urologist. One quick test (very unpleasant) and he scheduled surgery for me, and now 2 weeks later my life is wonderful again. Don't get bogged down by one doctor trying to prove his theory-get a second opinion and find a doctor willing to treat you quickly and not drag out the process. If I had been able to find a good doctor 3 years ago I would not have sacrificed so much quality of life.
 
About 5 years ago I started having prostate issues. I found a urologist, he spent 3 years and a ton of my money trying to prove I had cancer. In the meantime I had 2 episodes of massive kidney infection that caused septicemia resulting in multi day stays in the hospital on high powered IV antibiotics.
Then I moved and found a new urologist. One quick test (very unpleasant) and he scheduled surgery for me, and now 2 weeks later my life is wonderful again. Don't get bogged down by one doctor trying to prove his theory-get a second opinion and find a doctor willing to treat you quickly and not drag out the process. If I had been able to find a good doctor 3 years ago I would not have sacrificed so much quality of life.

God, that's terrible. I'm really sorry you had to go through that, Corky, and I could not, could not agree more. It took me close to 10 years and I don't know how many physicians to finally get the right team to figure out what's wrong with me, and so a better way to manage it as it's a debilitating & permanent condition.

Fingers crossed for you, buddy. Thanks for sharing.
 
Physicians are human too. Medicine is an extremely complex field and on top of that it changes constantly.

I'm glad you found someone who could fix the issue!
 
A real problem is living in small towns. The only urologist here is close to 80 years old, I'm not letting him anywhere near me with a sharp object. The hospital here has tried to recruit a new one but apparently none are willing to move to a town with fewer than 250K people. I made my appointment in Las Cruces back in October, the first available appointment was in January because one of their group had retired a year ago and they can't find a replacement.
 
Physicians are human too. Medicine is an extremely complex field and on top of that it changes constantly.

I'm glad you found someone who could fix the issue!
I'm not at all anti doctor. I really appreciate how hard their job is since the owner's manuals are pretty useless. I just want to let people know that if they can, don't hesitate to go outside your current system and get a second opinion. I had a bad doctor who misdiagnosed an illness many years ago. When I pushed for a second opinion a colleague of his confirmed the diagnosis, purely out of respect for the original doctor. It was the third guy I went to in a far away city who saved me from the first 2 morons.
 
Thanks for sharing!

Also, laughter is very good medicine.
 

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I'm not at all anti doctor. I really appreciate how hard their job is since the owner's manuals are pretty useless. I just want to let people know that if they can, don't hesitate to go outside your current system and get a second opinion. I had a bad doctor who misdiagnosed an illness many years ago. When I pushed for a second opinion a colleague of his confirmed the diagnosis, purely out of respect for the original doctor. It was the third guy I went to in a far away city who saved me from the first 2 morons.

Absolutely. In my experience, most of what doctors thought was ortho in nature and so records accumulate and in reviewing them, that's the narrow scope they tend to investigate. A lot of really compassionate, skilled physicians tried. Some were just bad doctors, looking suspiciously on something they cannot find an easy answer for. This latter really sucks - to be told you're a malingerer when you're in extreme pain 24/7.

Finally, I landed on the best GP of my life. The greatest thing he said to me early on is that what's going on with me "is really frontier medicine. It's rare, and we can't quite get the mechanisms involved. Medicine just hasn't caught up with you yet."

That was the first time I'd ever heard a caring physician, a great physician, admit the limitations of his practice. Eventually we found out I sustained CNS injury, likely from so many years as a direct apprentice to a Japanese zen and martial arts master (brutal training - my cervical spine especially took a lot of beating), and so now the signalling between my CNS and all nerves is badly screwed up. I'm literally firing constantly, feels like intense burning over 95% or so of my body, and a host of other bummer symptoms.

Just to say while I can get frustrated from time to time with a given physician, I do know that the good ones care and do their best. And in my case, I have an unbelievable team of physicians to work with what I have. I could not be more grateful.
 
I just don't want people to waste time with treatments that don't work. Medication worked great for a couple of years, but when it didn't work anymore I feel like my doc should have been more proactive. And the fact that it takes 3-4 months in small town America to even get an appointment doesn't help. I got "lucky" this time because my kidney infection kicked in the day I finally had my appointment and it was pretty clear to everyone that as soon as the infection was gone I had to have the surgery. I often wonder how many people die waiting for their crucial initial visit? Specialists can make so much more money in a big town so they are not willing to serve small town America. We are 3 hours from El Paso, 3 hours from Tuscon, which are both pretty big cities, but who wants a 6 hour round trip to see a doctor.
 
I'm getting 'of age' too and have a number of friends with different stages of problems. I seem to be lucky so far. I've taken Saw Palmetto for about 10 years, never get up at night for a piss and my annual physicals are clean. I get 'the finger' yearly and my doc tells me I have a tiny one............prostate that is.
I wish you continued good health!
 
I'm getting 'of age' too and have a number of friends with different stages of problems. I seem to be lucky so far. I've taken Saw Palmetto for about 10 years, never get up at night for a piss and my annual physicals are clean. I get 'the finger' yearly and my doc tells me I have a tiny one............prostate that is.
I wish you continued good health!
Strangely I never had the "night p!ss" issues, even as recently as December. BUT, that was probably helped by limiting myself to 2 or less beers daily, and not drinking a beer after 6PM and otherwise limiting late night liquids. I coped by developing a true love for single malt Scotch, taking 2 small doses between 9 and 10 PM. Now that my issues seems resolved, my wife is pushing me to start brewing beer again and I may have to accommodate her demands. She is my nurse after all.
 
I just don't want people to waste time with treatments that don't work. Medication worked great for a couple of years, but when it didn't work anymore I feel like my doc should have been more proactive. And the fact that it takes 3-4 months in small town America to even get an appointment doesn't help. I got "lucky" this time because my kidney infection kicked in the day I finally had my appointment and it was pretty clear to everyone that as soon as the infection was gone I had to have the surgery. I often wonder how many people die waiting for their crucial initial visit? Specialists can make so much more money in a big town so they are not willing to serve small town America. We are 3 hours from El Paso, 3 hours from Tuscon, which are both pretty big cities, but who wants a 6 hour round trip to see a doctor.

Yep. All of this, I agree with. In France, the way the system works is that doctors don't make a ton, but then their education is subsudized, med mal is structured so it's nowhere near as costly as here, so they don't need to clear $1M yearly just to pay off med school and cover their insurance premiums. From French satisfaction reports, it works out well - for them. Every country's culture is different.

Relatedly, seems to me incentives need to be put in place to get doctors out to the rural areas. Lower education costs in return for X years of service (reminds me of military in some ways), creating practice areas in rural medicine - I can see that as a subset of internal or family medicine, since rural areas experience different needs than typical urban concentrations, increased funding to "mobile" clinics or secondary services - something of the Methodist Church peripatetic existence, but on 4 wheels, and medicine.

I know very little about it but know of the "locum tenens" system, basically temp workers to fill in need in rural facilities, but they are physicians.

It goes to culture, again. If this country is willing to see this is a vital area worth all of us trying to remediate, we will bear the costs happily. If not, I'm afraid, it's a tough sell. And I think that sucks. I'm a democratic socialist so I'd have a different viewpoint from bwarbiany, whose view I'm interested in, here.

I'm very glad you caught it, Corky. I was in some pretty deep doodoo last year from a severe, acute pancreatitis attack, causes unknown. My system hospital (I'm University of WI, for my team) is literally about 10 minutes away, and I'm extremely grateful for it. Quality healthcare is something I believe is a national priority - no citizen should suffer or worse, for lack of access.
 
Yep. All of this, I agree with. In France, the way the system works is that doctors don't make a ton, but then their education is subsudized, med mal is structured so it's nowhere near as costly as here, so they don't need to clear $1M yearly just to pay off med school and cover their insurance premiums. From French satisfaction reports, it works out well - for them. Every country's culture is different.

Relatedly, seems to me incentives need to be put in place to get doctors out to the rural areas. Lower education costs in return for X years of service (reminds me of military in some ways), creating practice areas in rural medicine - I can see that as a subset of internal or family medicine, since rural areas experience different needs than typical urban concentrations, increased funding to "mobile" clinics or secondary services - something of the Methodist Church peripatetic existence, but on 4 wheels, and medicine.
We have a good friend who is a doctor in France-he's very happy with his job and his work/life balance. His staff consists of he and his wife, a nurse. His office doesn't have 10 people working insurance claims, trying to get pre-authorizations, or figuring out what an individual's insurance will or will not pay for-it's a much more streamlined system. My alleged heart attack there a couple of years ago cost me $165, as opposed to my employee who had the exact same issue here and he ended up paying over $20,000 because he didn't believe in insurance.
As to incentives, the hospital in Carlsbad was very good at that. But the problem was that once those doctors fulfilled their 2 year obligation they hit the road and suddenly I had a new doctor-often an out-of -network provider that nobody explained or mentioned until I got the bill because our insurance refused to pay. Back in the late 90's I had a truly excellent doctor, he spent time with me, explained everything, discussed my entire medical history at every visit. He didn't churn through enough patients daily so the hospital fired him and brought in more medical robots stuck in Carlsbad, plotting their escape at the end of their 2 years
 
My system hospital (I'm University of WI, for my team) is literally about 10 minutes away, and I'm extremely grateful for it.
I will admit that a lot of times for non-serious medical issues I make appointments so that I will have the opportunity to visit breweries, buy brewing supplies, or more often for rock/mineral collecting opportunities I might not otherwise have. For instance if I can choose a dermatologist in Roswell or Albuquerque I would tell the boss I had to go to Querque, take 3 days off and spend a day collecting petrified wood! BTW, for 29 years as an oilfield geologist I was on call 24/7, even on vacation, I had to be available to answer questions from employees and clients so skipping town once in a while was justifiable(I was still available to take calls or emails)
 
We have a good friend who is a doctor in France-he's very happy with his job and his work/life balance. His staff consists of he and his wife, a nurse. His office doesn't have 10 people working insurance claims, trying to get pre-authorizations, or figuring out what an individual's insurance will or will not pay for-it's a much more streamlined system. My alleged heart attack there a couple of years ago cost me $165, as opposed to my employee who had the exact same issue here and he ended up paying over $20,000 because he didn't believe in insurance.
As to incentives, the hospital in Carlsbad was very good at that. But the problem was that once those doctors fulfilled their 2 year obligation they hit the road and suddenly I had a new doctor-often an out-of -network provider that nobody explained or mentioned until I got the bill because our insurance refused to pay. Back in the late 90's I had a truly excellent doctor, he spent time with me, explained everything, discussed my entire medical history at every visit. He didn't churn through enough patients daily so the hospital fired him and brought in more medical robots stuck in Carlsbad, plotting their escape at the end of their 2 years

Jesus, man, I didn't know you had (or were diagnosed) with a heart attack. That's enough brother, stay healthy!

Yes, the impermanence of care is something I knew with most of my thoughts, and that sucks completely. We moved here (Madison, WI) in 2009 and have been fortunate enough to have had my team of doctors all the way through.

I'm truly sorry man. People who don't need it have no idea how devastating it is on people who do need it. I do know rural medicine and rural issues are increasingly gaining traction but now with the fascist takeover (my opinion), I have no idea what's going to happen. My primary is my wife's work, and my secondary is Medicare. Yes, we're worried.
 
Jesus, man, I didn't know you had (or were diagnosed) with a heart attack.
this was actually funny. My wife and I were preparing a fresh seafood dinner for one of her brothers and his wife. As I got ready to steam the mussels I suddenly couldn't breathe and I had terrible chest pains. Of course I ignored it and kept prepping but my BIL and my wife commented that I was turning gray so off we went to the regional hospital. After every kind of test they could think of they couldn't really find anything wrong, but I still couldn't breathe. At 2:30 AM, after being in the ER 7 hours, I rolled over on the gurney and everything was fine. Turned out to have been some freak muscle issue. I had been installing window screens the day before on the second floor and fell halfway out the window, hitting my chest on the stone window ledge, that's all we could figure out. I'm really healthy as can be, my normal routine is to walk 25 miles a week in the mountains we live in. Now this illness has knocked over 20 pounds of muscle mass from my arms and legs but it will come back
 
It goes to culture, again. If this country is willing to see this is a vital area worth all of us trying to remediate, we will bear the costs happily. If not, I'm afraid, it's a tough sell. And I think that sucks. I'm a democratic socialist so I'd have a different viewpoint from bwarbiany, whose view I'm interested in, here.

You can have my viewpoint @Gadjobrinus -- but not here. We'll have to take that one to the debate forum ;-)

@corkybstewart Glad you got it figured out. I agree with you on some of the things you're saying about "no owners manual", and I see it in my work as well which is engineering. I'm quite often troubleshooting customer issues, and it's one of those things where you're working with incomplete information, sometimes wrong information, tests that lead you in the direction is in one area even though that's completely the wrong direction to look, etc. When you finally figure it out it's often one of those "Aha!" moments when you realize everything falls into place and you understand why all the interim steps were going wrong.

Hope you get back to full strength and full health soon!
 
A guy in our local rockhounding club, my age, has the same basic prostate problem that I had. We talked about him making an appointment with my doctor last year, but he kept putting it off. Last month he and his wife went rockhounding with me and my wife, and I asked him if he made an appointment. No, he's doing fine, the medication is working great. Literally 2 days later he's in the ER, the nurse botched the catheter insertion and he's now got an abdominal catheter. They live in an RV while their house is being built but he can't climb the steps to get into it so he's living in a motel. Because of the abdominal catheter, he can't get an appointment with the urologist. Now they are trying to get him into the mayo Clinic, I don't know how that process is going.
My point in all this rambling is to beg you guys to not put it off, it does not get better and it will not go away on it's own.
 
I'll add my two cents: my dad died of metastatic prostate cancer at 75, and it was not a good way to go at all. Two years before he was kicking ass on the tennis courts and ski slopes. He had the surgery at 70 and of course the surgeon said "we got all of it" (three years later it was obvious they didn't). They threw the kitchen sink at him drug wise but never found the magic combination and the decline once started was rapid. He was still holding out for tailored therapies but that didn't happen for him.

With that I've been getting PSAs and the "full Monty" every year. I'm still waay low (low 2s) so so far so good, but it seems if I live long enough I'll get it, too...

Cheers!
 
I'll add my two cents: my dad died of metastatic prostate cancer at 75, and it was not a good way to go at all. Two years before he was kicking ass on the tennis courts and ski slopes. He had the surgery at 70 and of course the surgeon said "we got all of it" (three years later it was obvious they didn't). They threw the kitchen sink at him drug wise but never found the magic combination and the decline once started was rapid. He was still holding out for tailored therapies but that didn't happen for him.

With that I've been getting PSAs and the "full Monty" every year. I'm still waay low (low 2s) so so far so good, but it seems if I live long enough I'll get it, too...

Cheers!
My PSA was between 8 and 13 for years but there was no cancer. But you have the "legacy" so you have to be diligent. Sorry about your dad, it sounds like a terrible way to go. My dad told me one morning he was going "home" and he died that afternoon.
 
I don't want to go into details but at my age I'm not unfamiliar with death and his was not good.
He was the optimists's optimist to the end, and was still believing medicine would come up with a therapy even while his body was ravaged.
I'm thinking slapping on a square foot or so of fentanyl patch would be a better ending...
 

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